The links we have listed here have been found and submitted by our members. We have listed them according to category whenever possible. We do NOT endorse any of these sights, we only present them for your education.

GENERAL

http://www.chop.edu/consumer/index.jsp
Omphalocele, Children's Hospital of Philadelphia Has an excellent Faq section.

http://www.pedisurg.com/PtEduc/Omphalocele.htm Site of Texas Pediatric Surgical Associates. This site mentions Moos.

http://www.pedisurg.com/pteduc/malrotation.htm The Texas Pediatric Surgical Association has excellent discussion of Malrotated Organs

http://depts.washington.edu/cves/lapnis.html Fundoplication -This surgery is for GERD "Gastro Esophageal Reflux Disorder"

http://www.camp-a-roo.com/UDGD/tom.shtml This site tells the story of a Mother and her pregnancy and her sons problems. Although the baby did not have an Omphalocele you may find it interesting to read how the Mother coped
with her sons hospitalization and life at home. It is lengthy but she has a lot of good advice for parents that could save you problems.

http://www.1uphealth.com/health/omphalocele_info.html This site is commercial but has some good information.

http://www.comeunity.com/premature/scars.html A site that deals with the scarring that occurs from procedures done while a child is in

NICU.

http://www.beckwith-wiedemann.org/ This genetic syndrome can be associated with an Omphalocele but does not always happen.

http://www.icondata.com/health/pedbase/files/OMPHALOC.HTM A medical site with interesting data. Was last updated in 1994 and we are seeing a much more positive outlook now.

http://www.dralami.edu/chir/digest_omphalo2.htm This is an English site with many graphic pictures that show the different stages of an Omphalocele. (also called an Exomphalos in England and other places in the world)

http://www.neonatology.org/ref/ddx/gastroschisis.html Comparison of Omphalocele and Gastroschisis.

http://www.cpdx.com/cpdx/abdwall.htm A medical discussion of Abdominal Defects

http://www.twinenterprises.com/ a nonprofit organization providing qualitydisability-related resources to families, individuals and professionals.

http://www.camp-a-roo.com/UDGD/ The UDGD Spot - A Forum discussing Undiagnosed Genetic Disorders

http://www.nlm.nih.gov/medlineplus/encyclopedia.html MEDLINEplus: Medical Encyclopedia: This site provides understandable info on most medical problems

PAINT AND WAIT
(Silvadene Cream Drugs.com - Drugs Information Online information about the cream used in the Paint and Wait Treatment

BREAST FEEDING
http://www.lalecheleague.org/FAQ/adopt.html General Information

BELLY BUTTONS

Nobellybutton.org Main Page Yahoo! Groups : nobellybutton no belly button group
This group originally started on Yahoo and then moved to Nobellybuton.org.

FEEDING PROBLEMS

http://www.new-vis.com/ New Visions Founded by Suzanne Evans Morris this site provides continuing education and therapy services to professionals and parents working with infants and children with feeding, swallowing, oral-motor, and pre-speech problems. Many of our members have recommended this site.

Jen states: "On the website, click on "Feed Your Mind" and explore the paper titled, "Gastrointestinal Health and the Child with Feeding Problems (Parts 1 and 2)". Any of you who are questioning food allergies and such will probably find it worthwhile to take a look at. There's also an excellent article about stimulating oral interest for kids with NG tubes or G-tubes."

http://www.gtube.org/ The G Tube mailing List has a number of components with informations about tube feeding

TRACHEOSTOMY

http://tracheostomy.com/ Instead of breathing through the nose and mouth, the child will now breath through the tracheostomy tube.

http://www.passy-muir.com/ A site that offers Research, Products and Education for the Tracheostomy patient.

^i^ O Angels ^i^

http://groups.yahoo.com/group/Oangels/ Oangels brings emotional and spiritual support for families with their own Angel In Heaven.  Open your heart, mind, soul and spirit, through the memories planted within every mother's heart here.